Celebrity endorsement

Since I last posted: Stephen Fry has fessed up, George Monbiot, the writer and environmental activist, has outed himself and now Bill Turnbull, the former BBC Breakfast host is in on the act. Prostate cancer gets the full celebrity endorsement as all the poor bastards have it; proving that PC is nothing if not democratic.

When I meet people who I may not have seen for a while but who know about my condition, I gauge four different responses.

  1. I’d like to make it implicitly clear, without mentioning the subject, that this is something I feel very uncomfortable about and I don’t want to talk about it.
  2. I kind of want to talk about it or sense I should, but feel uncomfortable raising the subject.
  3. I’m concerned about you, so tell me: “How are you getting on?”
  4. I’m concerned about you, want to know how you are getting on, want to know what kind of treatment you are receiving, if the side effects are awful and what the prognosis is.

Let me say right away that every response is just fine. If you don’t want to talk about cancer as it gives you the heebie-jeebies I completely understand. It can give pleasant banter a savage blow to the head. Instead, let’s chat about playing guitar in a rock & roll band, when Wenger will finally leave Arsenal, how wonderful Aimee Mann is or the relative acting merits of say Jennifer Lawrence or Amy Adams. Dammit I’ll even talk about Donald Trump if we have too and yes, I have read ‘Fire and Fury.’ If you don’t want to talk about prostate cancer, then neither do I.

As to the second response, I can usually sense when someone is not sure whether cancer is a subject that should be raised in a social situation, so I raise it anyway but make it clear I’m not going to bore on about it. People usually want to know why I first went to the doctor (I had blood in my urine), how I’m feeling (Just fine thanks, I don’t plan on collapsing over the finishing line any time soon) and are you still able to drink? (Yes, and mine’s a large one) People are so dear, I’ve never been bought so many lunches and drinks, so thank you.

My response to those who come right out and ask me how I am is pretty much the same as the above, but with a little more detail. I went to the doctor because I had blood in my urine, but that’s gone away, so thank god I got checked out because if I hadn’t it would now be spreading and the two things we all know about cancer are:

a. We don’t want it.

b. If we’ve got it then let it be small, insignificant and localised.

Health note: (ignore the next couple of paragraphs if you are of a nervous disposition) I then assume the serious face and tell the guys to go get their PSA (Prostate-specific antigen) checked. It’s just a blood test but gives doctors an inkling as to whether you might be in trouble.

My PSA is quite low at 2.61 and a few years ago doctors may have left it at that, which would have been a mistake, but my Gleason Score, which grades the cancer, is quite high at 7. This is me: Gleason score 7 (4 + 3). I’m told most of the cancer cells found in the biopsy are likely to grow at a moderate rate, though some look likely to grow more slowly. It also indicates, as does the MRI scan, that most of the cancer is retained within the prostate, with just a small section attempting to break on through to the other side. I could now go on to tell you about the glories of having a biopsy but as you’ll probably never need one, I’ll leave it there. Put it this way if a prostate biopsy was rated on TripAdvisor, it wouldn’t get many takers.

And so finally to the person (rare in my experience), who wants the full enchilada, the whole story. Frankly, if they want it, they get it. It doesn’t really become me to be coy and reticent when here I am blogging to all-comers about my predicament.

I tell them about my treatment: no prostatectomy, which is the removal of the entire prostate gland, as a tumour is too close to my rectum for safe cutting and hacking. So, I’m on hormone jabs to shrink the tumour until September when the guest will be blasted with radiation in an effort to encourage the little bastard to check out. I could tell you about the side-effects of hormone therapy, but I think, dear reader, you have suffered enough. And frankly they are as nothing compared with the side-effects of being sixty-three.


 

Going private

Heading out to see a specialist I recalled the phrase: Never go to a doctor whose office plants have died. For the first time I was seeing a private doctor and forsaking the NHS. Would I find a better class of houseplant?

When I mentioned that I’d been diagnosed with prostate cancer, an old friend got in touch to say that he too was in the same unlovely boat. Like myself, he was prescribed hormone therapy, followed by radiotherapy. The hormone jabs didn’t agree with him and he started to investigate other treatments, but by that I don’t mean the snake oil brigade. What he found was a procedure with a snappy acronym, HIFU which stands for High Intensity Focused Ultrasound. It uses high frequency soundwaves to heat and destroy cancer cells.

It is a relatively new treatment so doesn’t have years of statistics to back up its efficacy in the way of the more conventional treatments. But it seems to have dispatched my friend’s cancer, with the huge proviso that it can always come back, so it seemed sensible to pay his doctor, Professor Mark Emberton, a call. He is Professor of Interventional Oncology at UCL and a leading light in new forms of prostate cancer treatment. He does work with the NHS, but appointments are limited, so as I have private health insurance provided by my employer I booked a slot with the eminent Prof.

I had always been told never to go to Harley Street as the docs there are often out of touch with the latest medical trends and live in glorious, slightly backward, isolation. Of course, you get the personal service and don’t have to mix with the hoi polloi.

Arriving at 8am, mine was the first appointment of the day. The usual crash and bash of the NHS was markedly absent as my wife and I were shown in to a wood panelled reception area with overstuffed chairs and copious magazines and newspapers. Two elderly orthodox Jewish gentlemen, dressed in black garb and with fulsome beards, were the only others present. They seemed very distracted and couldn’t sit still, but hey, cancer can do that to you.

A few minutes later, the professor comes into the waiting room looking for me and we are ushered into his large and surprisingly cold consulting room. Prior to the appointment all my NHS tests, including the pictures from my MRI scan, had been forwarded to Emberton and for the princely sum of £250, his minions had taken a look at my insides so as to bring the Prof up to speed.

I have one major tumour of around two centimetres located at the bottom left of my prostate. Apparently, I moved during the MRI scan so the little bastard is a bit blurry, but this does little to hide its inherent ugliness. This is a picture I’ve seen before and when people say a picture paints a thousand words, in this case that would mostly be words that end with off. Sod-off, fuck-off, bugger-off and piss-off come to mind. Can’t get to love this unwelcome guest.

The urbane doctor takes me through my test results and pictures. Prior to this consultation I had told my NHS doctors about this proposed visit, they knew of both Emberton and his treatment, and had said it would not be suitable for me. Prof Emberton did not demur and agreed my current treatment was for the best. A second opinion is valuable but can be problematic if it doesn’t endorse the first opinion. So thankfully, no tricky decisions.

I’m at a bit of a hiatus right now, hormone therapy underway, side-effects not too bad with the prospect of radiotherapy to follow in September. To begin with my cancer diagnosis was constantly front and centre in my mind, now while I can’t say it’s entirely out of my mind it can bloody well take a back seat. I plan to enjoy this Spring and Summer to the full and take the Autumn as it comes.

Oh, and yes of course the office plants were magnificent.