Back to Guy’s Hospital cancer centre for some more tests. They seem to have an animal acronym fixation here, so today it was both a PET scan and a CAT scan. I thought about asking if I should bring Rusty but I guess they’ve heard that gag before.
For those who have had the fortune never to visit Guy’s cancer centre, and I highly recommend you keep it that way, it is a bright new building with airport style displays often telling you your appointment has been delayed but ultimately which consulting room you should attend. Fortunately, there are no signs for departure gates.
Architects Rogers Stirk Harbour & Partners and specialist healthcare architect Stantec designed the building which as it says on the website is based around a series of ‘villages’. This is when you realise the whole 14-storey block is suffering from AED or Acute Euphemism Disorder as we doctors call it. There is the Chemotherapy Village and the Radiotherapy Village. As my friends will tell you I’m not much for the countryside but I don’t remember the Chemotherapy Village nestling in the foothills of the Cotswolds.
What I do think they should have at the cancer centre is a bar. I quite fancy swapping cancer related anecdotes with my fellow sufferers while getting on the outside of a bottle of Jack Daniels. And given everyone’s condition, smoking shouldn’t just be allowed it should be positively encouraged. ‘Smoke ’em if you got ’em’ should be the watchword at the Radiotherapy Bar. It would really help with the whole Villagey atmosphere they are trying to create.
The persistent patient
I’ve never been seriously ill before, so the experience of being an NHS patient is new to me. I have no doubt the care that I’m getting is second to none, Guy’s is rightly called a centre of excellence, but I’m learning there’s more to being a patient than just turning up on time.
The hospital is large and has many consultants so you don’t form a relationship with any one doctor. I’ve seen a different consultant on every visit, without exception they have been great, but you don’t get the personal touch.
In my experience comms is where they fall down. On several occasions, I’ve received letters inviting me to an appointment, after the consultation has taken place. Not a problem because I’d nailed the appointment on my previous visit. I’ve also had appointments booked that I didn’t need. Your appointments may be in several different locations and you may, for example, need to fast before a blood test. I’m in email contact with a nurse who helps me sort all this out as getting through on the phone is difficult. Keep notes, keep a diary and keep on track.
At other times, I’ve been in waiting rooms with perhaps 50 other patients all waiting to see a doctor. In this situation, I check the name on the badge of the person at the desk, say hello using their name, and If I’ve not been called half an hour after my appointed time I go back to the desk and ask very politely when I will be seen. Now, if English is not your first language, you are of a retiring nature, or perhaps you are old and not up the struggle, it is possible you will get lost in the system.
Screaming and shouting will get you nowhere, but quiet persistence will. Being a patient means looking after and looking out for yourself.
Doctors have a great mordant sense of humour. At one point I was banging on to a consultant about how both my parents had died of heart attacks at quite a young age and how I’d always assumed I’d be having triple heart bypasses and the like and with no history of cancer in my family never thought I’d be a (baby) boomer with a tumour. The doctor thought for a moment and said well Jim just to put your mind at rest you’re still far more likely to die of a heart attack. Thanks doc.