A friend phones with bad news

I guess it had to happen sooner or later. An old friend got in touch to tell me he has prostate cancer. A biopsy confirmed he is now part of our unlovely club.

In some ways I’m surprised this hasn’t happened before. I’ve never made a secret of having contracted PC. I’ve blogged about it pretty much from day one, so it’s hardly surprising that a friend would seek me out. For all that, it was horrible news and brought me up short thinking about the day I was diagnosed. But it felt good to comfort someone else and to pass on what knowledge I have on this tricky subject.

It just seems unfair

I met Les through work nearly forty years ago and we’ve been friends ever since. He recently had to undergo a heart bypass, which restored him to rude health after several years of feeling quite frail. It just seems incredibly unfair that on top of that major operation, prostate cancer has now come calling. Not that there’s anything fair about cancer.

Les had been under the ‘watch and wait’ regime and then more recently ‘active surveillance.’ The medics confirmed the cancer has not spread outside his prostate, which is good news. His combined Gleason is 7 and his PSA under 5. I tried to reassure him that his cancer should be eminently treatable.

READ ON

Calling time

It’s annoying when they don’t call on time. Yesterday, at 4pm, I was expecting my six monthly check up call from the oncology department at Guys. A week ago, my blood had been drawn at the Cancer Centre to check my PSA level. Having been off any form of treatment for 18 months, was my PSA set to rise?

Following three years of hormone therapy and two months of radiotherapy my PSA had stood for more than a year at a highly acceptable 0.02. My prostate cancer was barely detectable. At 3.55 I was in a mildly anxious state waiting to find out my fate. By 4.40 no one had called so I took the dog out for a stroll to alleviate the stress.

Walking up the road, the phone goes, and I duck into a side road pulling Bucket after me to find out the latest instalment of Jim’s cancer capers. In short, the news is good. My PSA has increased, a small amount, and now stands at 0.23. The lady from the Cancer Centre described this figure as ‘magnificent’ which rather surprised me but hey, I now have magnificent cancer or rather lack of cancer. At diagnosis my PSA was 5.03.

This time they also measured my testosterone level which is not something I’d had done before. The hormone therapy reduces testosterone in men to something like zero which as you can imagine produces some irritating side effects. (hot flushes and loss of libido etc.) Testosterone is like catnip to cancer, hence the need to irradicate it for a while.

My testosterone level is now a plucky 18.6 which meant absolutely nothing to me until I learnt that in men the range is generally somewhere between 9 and 30. Of course I’ve no idea what my level was prior to my treatment but it seems to be in a relatively good place.

The brutal reality is that my PSA level will probably continue to rise, but it’s impossible to say how far and how fast. Once it hits 2.0 some of the dreary treatments may have to recommence but now, I have another six months until my next call and I’ll be putting cancer to the back of my mind. It’s something I’ve become rather good at. But next time Cancer Care at Guy’s, can you please respect the calling time.

Keeping cancer in its place

It was several years ago now, but I remember an older work colleague telling me he had just been to a close friend’s funeral. I commiserated and he said: “Jim, these days it’s like shucking peas.” He was in his seventies then, and friends were starting to fall away. I’m 67 in a couple of weeks, as of my writing this, and it looks like I’m now on the same trajectory.

A farewell to a friend with prostate cancer

Last Sunday, as of this writing, I attended a farewell and celebration of the life led by my old friend Geoff. He died a couple of weeks earlier at his home in Switzerland, and this was a chance for his UK friends to bid him bon voyage.

Geoff contracted prostate cancer some years back and was treated using High-intensity focused ultrasound (HIFU). This form of treatment uses ultrasound energy to destroy cancer cells in the prostate.

He suggested I investigate HIFU when I, too, was diagnosed with prostate cancer. My doctor deemed it would not work for me, but to all intents it appeared to have worked for Geoff. Sadly, he died very quickly from a brain tumor, but there is some thought that the cancer may have been linked to his prostate cancer. Read on…

Do You Talk to Your Cancer?

I was asked an unexpected question the other day: “Do you talk to your cancer?”

Frankly, I wasn’t sure what to say, and unclear what sort of answer they were seeking. Given how many questions I get about my cancer, this was refreshingly new, but more of that in a moment.

A difficult guest

The simple answer is no, I don’t talk to the intruder in my prostate, but I do come close. My cancer is certainly a character who right from the get-go I called my Unwelcome Guest. It became the name of my original cancer blog.

Inevitably I mined the term for all its metaphorical worth. So, there was always talk in the blog about the ‘guest’ checking out, and once I was in remission, there was the inevitable fear of him checking back in. At one point I remember talking about cancer as someone who overstays his welcome, leaves the bath taps running, floods your apartment, and brings the ceiling down. I became a bellboy to a nightmare lodger. Read on…

Preen health update

I guess you may occasionally wonder while grooming the dog/mowing the lawn/teasing nits out of your child’s head as to how Jim is doing with all that prostate cancer nonsense. (Before I go on, I should say that if it never passes your mind, I’m fine with that too)

It’s been a year since I came off any treatment and while irritating side effects continue all appears to be going fine as when I last checked I’m not dead yet.

I had a consultation on Wednesday (4.7.21) and was told my PSA was extremely low (0.02) which means that for almost two years I’ve had no evidence of disease. For now at least my Unwelcome Guest has scrammed.

I get my next test and appointment in 6 months. That’s all, you can go back to mashing turnips.

Jim Preen

Can a Hound Help You Through Cancer?

Filling a dog-shaped hole in my life

An old friend of mine, who I met many years ago when we both worked at ABC News, is now a senior spokesperson at the United Nations in New York. I recently saw a picture of him with the UN therapy dog.

In the hallowed halls of the UN, Chloe is famous and has her own Facebook page, and people love it when she goes visiting at their offices. As my friend says with Chloe, there’s no physical distancing required! Chloe is an English bulldog and joined the team in 2017 to much acclaim.

All of which got me thinking about my own rescue dog called Rusty. I rescued her from the local dog pound, and then she repaid the favor and rescued me. Rusty, also known as Bucket, came into our lives in October 2017. A month later I was diagnosed with prostate cancer. Good timing Bucket.

Getting Rusty

For years our daughter had been pestering us for a dog, but I’d always said no as city center living didn’t seem right for a pooch. On our holidays that summer I finally weakened, largely because when growing up my parents always had dogs and I’d loved them, particularly a small brown dog called Jenny who was my mother’s favorite. I couldn’t see any reason why that pleasure should be denied to my daughter.

On return from the vacation, we went to the rescue center and asked if they had a small street dog fit for a capital city. We saw three, the first of which was Rusty, who jumped straight on to my wife’s lap and demanded to be pet.

Despite reservations about taking the first dog we saw, Rusty came home. Walking schedules were drawn up, and we set about becoming a four-piece family with Rusty filling a dog-shaped hole in our lives.

Then in November I was told I had prostate cancer. Read On…

Vaccine, Vaccine, Vaccine

The world is obsessed with vaccines. Well, in truth, it’s those vaccines that will hopefully set us free from COVID and allow us to return to something close to call normal life.

At the time of writing, at least 150 million vaccine doses have been administered in the US, and I have received both my Pfizer shots. The Pfizer vaccine was developed in conjunction with the German company BioNTech. BioNTech, a relatively small firm, needed the muscle of pharma giant Pfizer to help run large clinical trials and scale up mass production to meet global demand.

Prior to turning their attention to coronavirus, BioNTech had been working on finding ways to help the immune system tackle cancer. Following the success of their COVID vaccine, the value and profile of the company has grown, increasing its potential ability to have access to resources that will help in their continuing fight against cancer.

Exploring the connection

Interestingly, there is direct cross-over in the research required to beat coronavirus and cancer. In many instances, both use mRNA-based vaccines that enable the immune system to attack a predatory intruder.

Read on…

Let’s talk about cancer: Part one

Jim was diagnosed with prostate cancer in 2017 at the age of sixty-three. In his series, Let’s Talk About Cancer, he shares the challenges of talking about the disease, how it can mess with the mind, and ways it can affect family and friends.

Blitzed and confused after a diagnosis

You’ve just been diagnosed with cancer. You feel blitzed, confused, and frankly terrified. Who are you going to tell?

There’s certainly no one answer to that question, and there’s no right answer either. You’re scared and bewildered, and of course we know that if you tell someone you have cancer, then their first thought is going to be: “Oh he’s going to die soon.”

Cancer is a big bag of unwelcome knowledge that you suddenly find yourself hefting on to your shoulders. You may want to turn to family and friends, or you may not. But one thing is certain: it’s tough to turn cancer into small talk.

Read on…

Prostate Cancer Screening At A Supermarket

It sounds like science fiction, but according to Mark Emberton, Professor of Interventional Oncology at University College London, prostate cancer screening could be coming to a supermarket near you.

10-minute scans

Professor Emberton is in charge of a clinical study which he’s hoping will transform prostate cancer screening. The $6.5 million trial, which started in August of 2019, stalled in the spring because of covid, but is now back on track. His team is looking at scans that take only ten minutes, which could potentially be rolled out to the general population.

I sat down with Mark to hear about his work.

Prostate cancer screening difficulties

In the UK, there are only a few nationwide screening programs, including breast cancer for women and bowel cancer for men.1 Prostate cancer is now the most-commonly diagnosed cancer in England, but nationwide screening has proved elusive, as it has such a poor diagnostic record.2

Traditionally, tests start with a digital exam followed by a PSA blood test, neither of which are particularly accurate or trustworthy. Around 75% of men with high PSA levels don’t have cancer, but about 15% with normal PSA levels actually do.3,4 I should know: when I was diagnosed with a malignant tumor, my PSA stood at just 5.03.

Read on.

When will the side effects go away?

Three years ago I had my first hormone jab. Now I’m going cold turkey. My last shot was three months ago, and the course of treatment is complete.

All good, but I want to know if and when the side effects of this hot flashin’, erection robbin’, mood swingin’, bone thinin’ son of a gun are going to disappear.

A big needle with a job to do

As most people reading this will know, Zoladex (my preferred hormonal cocktail) prevents the production of testosterone, which is something prostate cancer loves to feast on.

Zoladex is described as being “administered subcutaneously every 28 days into the anterior abdominal wall below the navel line using an aseptic technique under the supervision of a physician.”1

What Zoladex fails to mention is that it involves a spring-loaded instrument of torture which the Spanish Inquisition would have instantly co-opted as one of their toys, if only Big Pharma had existed in the 16th century. It’s a big needle with a job to do.

Read on